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Talking To Family AND Completing Forms
Talking with your family is very important - and can be very hard.
The people who love you most will often find it difficult to talk
about your serious illness and eventual death. But if they need to
make any decisions on your behalf, knowing what is most important
to you can guide and comfort them. At the very least, give them your
answers to the questions in the values history questionnaire. Sit
down and talk about it with one or two people at a time, or send them
letters. If you can arrange a family meeting, talk to your whole family
AND give them a copy of your completed values history questionnaire.
And be sure to discuss your answers specifically with whoever will
be speaking for you when you cannot - your surrogate or proxy
decision maker.
If you have signed a standard living will, you may think that you
do not need the values history questionnaire. Advance directives,
such as living wills, are legally endorsed documents and the values
history questionnaire is not. However, despite the precise legal
language, living wills are often difficult to interpret. Conventional
living wills include words such as "terminal," "extraordinary,"
and "heroic" that mean different things to different people
at different stages of disease. Thus, your answers to the values
history questionnaire can be useful to your proxy, who needs to
understand what you mean in your advance directive, taking into
account your stage of disease and overall condition. You are often
best advised to complete a values history and a legally endorsed
advance directive.
Making Sure Your Wishes Are Respected and Followed
First and foremost, tell your family and doctor what is important
to you and write it down. From a legal perspective, it is better
to write down what you want than to trust that everyone will remember
what you said. A written statement gives your choices clarity, visibility,
and validity. Be as precise as you can, both about what treatments
you want and about what you hold dear, so that everyone will remember
what you said.
Remember, too, that you can always change your mind. Your choices
may change with your experiences. For example, people often choose
aggressive care at the start of an illness, but then change their
minds when the disease is not responding to treatment. It makes
sense that your choices about your care might change as your condition
changes. Preparing advance directives and talking about how you
and your family plan to cope with serious illness and death can
help to make the end of life a time of comfort and dignity - not
a time of hurried choices.
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