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The hospice movement in Austria is a fairly recent phenomenon. It was
only in the middle of the seventies that a first group of Austrian nurses
who were committed to the concept went to England in order to learn
more about it from the founder of the hospice movement, Dame Cicely
Saunders (a physician and nurse who had created the first hospice in
London).
Subsequently, the German Association for Final Care and Bereavement
Support (IGSL - Internationale Gesellschaft für Sterbebegleitung
und Lebensbeistand) established a subsidiary in Vienna/Austria that
organized discussion groups and workshops and promoted the idea of a
"living will".
The hospice idea was also taken up by SECO, an initiative of the Evangelical
Church, and by other institutions which, in 1993, jointly created the
umbrella organization "MENSCHENWÜRDE BIS ZULETZT" (Death
with Dignity). This association was later renamed HOSPIZ ÖSTERRREICH
(Hospice Austria) and can be considered as the nucleus of the first
nation-wide activity in this field.
In the following years, with the help of public relations specialists
and politicians, the hospice idea was widely publicized. This often
gave rise to negative reactions, especially within the medical community,
where quite a few doctors clearly spoke up against the idea of "death
wards" and "euthanasia".
Today, in 2001, there are 6 hospices in Austria, one mobile hospice
team (in Vienna) as well as nearly 50 micro-initiatives in all of Austria's
9 provinces.
Austria's first permanent hospice was founded in 1995 ("Hospiz
St. Raphael" in Vienna). Six months later, another hospice was
opened in the framework of a geriatric facility ("Geriatriezentrum
Wienerwald - GZW"), initially seen as a pilot project for two years.
It was, however, decided that this hospice should continue to operate,
and with its 19 beds it is still Austria's biggest, the other hospices
offering only 9 to 12 beds (except the mobile hospice that cares for
many more patients, but with the help of "flying" care teams
using a whole fleet of vehicles). The third hospice created in Austria
was the "Hospiz-Station der Caritas Socialis" (Vienna, Rennweg).
A specific feature of the Austrian Hospice Movement is to be seen in
the fact that it is deeply rooted in the churches. All the hospices
are indeed managed and financed by religious communities, with the exception
of the "GZW", that is owned by the City of Vienna. This is
also true for the 3 others that are already operating (one in the province
of Tyrol and two in Upper Austria) as well as for those that will open
soon.
Equally typical is their integration in Austria's existing hospital
structures. The "classic" hospice model is geared to maximize
nursing care, if necessary at the expense of sophisticated or high-tech
medical interventions. It encompasses also care by volunteers (relatives,
friends, or other helpers with a purely idealistic motivation) who are
considered to be major pillars of the hospice movement. In the context
of support for the terminally ill, sophisticated medical care is needed,
mainly in the form of palliative treatment. This is a specialty for
which two advanced training courses are available in Austria since 1999.
It must be noted, however, that in Austria's Medical Schools there
is still no chair in palliative medicine. This deplorable state of affairs
is due to be changed soon.
The fact that nearly all of Austria's hospices are integrated in the
ordinary hospital environment has brought about a medicalization of
terminal care that goes against a tradition still very much alive in
the English-speaking countries, namely the idea that the dying should
be taken care of by the community and in the midst of their loved ones.
This raises the question of whether this kind of institutionalization
is consistent with the true roots of the hospice movement.
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