By: Mark Castleden
My father had polio when he was young. He used to wear braces on his legs; he is now crippled in his left arm and leg, and his left foot turns outward and has become extremely painful. Is there anything that can be done to relieve this?
Your father may well have what is called the post-polio syndrome. After years of struggling along, the diminished number of nerves that remained after his original polio attack have simply worn out. There are probably between 250,000 and 1 million victims of the post-polio syndrome in the USA, and many more worldwide. The link given below provides more detailed information on this.
Your father should try to attend a Post Polio Clinic. There are approximately 70 of these in the United States. They have comprehensive programs providing patients with one-stop access to medical care, physical therapy, and orthotics.
Post Polio Clinics utilize the rehab triage model. Prior to their initial visit, patients are asked to complete a comprehensive questionnaire regarding their medical history. This information is reviewed by a physician and a complete musculoskeletal examination is performed at the first visit.
A working diagnostic impression is formulated based on the findings, and a treatment plan is outlined. If other lab data or diagnostic tests are required, they are arranged accordingly. If additional consultation, to rule out other disease, is necessary, the patient will be referred to the appropriate specialist.
Muscle strength, flexibililty, gait and exercise programs are evaluated by a physical therapist during the initial visit. Recommendations for continued therapy, increased education or changes in the current exercise program may be made. Needs for adaptive equipment, mobility aids or changes in home environment will also be assessed.
Orthotic devices and needs are evaluated by a certified orthotist. Modification or changes in orthotic use will be recommended, as required.
The team of specialists consult to develop a complete diagnostic and treatment plan. The plan is outlined and discussed with the polio survivor in order to meet his or her particular needs and recommendations are then made. Follow-up visits to the clinic are arranged as needed.
To find a clinic in your area, search the link given below (www.postpolio.org). Your father could also become a member of a post-polio support group to meet with other people who have similar experiences. Contact with them may provide him and you with practical advice, information, and company, through group activities and also counseling and practical assistance.